Dear Gentle Readers:
I need to apologize to you. The rules of blogs according to pinterest, is that I should have a schedule on which I base my blogs, daily, weekly, certain days, etc, and I have not been doing that. So for that, I am sorry.
Medically speaking I am not doing well. In my last post I talked about how I was trying different things for my migraines, and how I thought I was feeling better. That was wrong. I have been in status migraine for the last 15 days, which is very uncomfortable if you think about it. It makes it hard for me to eat, shower, sleep, think, really – do anything. (I feel like a smelly, gross person that is grouchy)
Today I was tutoring one of my students, and he looked at me and asked several times if I was okay because I looked sad.
That bothered me.
I’m not a sad person, I’m a happy smiling person. I remember being little at my parents cottage and the power went out, and I said as a joke “let there be light” and as I said it, the lights turned on, and I was smiling, and my dad said something along the lines of me making the room bright.
I’ve always thought of myself as someone who made the room/world a brighter place. Not because of my great beauty (which is generally mediocre beauty, but these days there is a serious lack of) but because of my bubbly personality. But now, I feel as though people don’t want to be around me.
I am constantly thinking about if I am talking to much about migraines, or anxiety, or if I’m not talking enough and the person I’m talking to thinks I’m rude. I’m wondering if the person who just asked me how I am really cares? Or if they just want to hear that I’m ”fine.” And the sad pity looks. Or the “does she really have a problem” look.
It bothers me sometimes. I’m aware that I don’t have cancer, and I’m not dying or anything (even if it feels that way sometimes) but people who say “just take a pill” or “yeah, I get headaches too” and they wonder why they can take a pill and go back to work, or go back to dancing at a wedding, meanwhile – I can’t.
I read up on Spoon Theory earlier and I wish everyone knew about it. Even though I look fine and healthy – I don’t have an infinite number of spoons. You never know what is going on with the people around you – even if you see them every day, there could be a reason for changing behaviours.
I will Say – I am very proud of myself, I recently had a friends wedding to go to, and even though I had panic attacks almost all day leading up to the wedding, I still showered and got dressed and went. I had a migraine going in, and I knew it was going to be crazy and there was going to be a lot of people there, but I still went. I took my own car, so that if I wanted to leave early, My partner could either come with me, or with one of our other friends – but I didn’t want them to have to leave early, or me to end up crying in the bathroom with a migraine. And the event wasn’t’ as bad as I thought it was going to be. (the picture at the top is me and my boyfriend. Right at the start of the night. By the end I was a mess… but I made it there with a smile on my face.
They didn’t do dancing until after the speeches (like 10000 speeches each 1000000 min long) and dinner… so I was able to talk to my friends a little, see the bride, take pictures to prove I was there. Then when the dancing started, I tried dancing a little and I was able to dance (well.. bop) for quite awhile before my migraine took me out of the game. I stayed at that wedding until almost 11pm. Which I realize isn’t that late. But considering I then spent the next day in utter agony (I used the spoons for that day, the next day, and a little bit of the day after) and these days I can’t even make it to games night, or dinner, or a birthday party if there are going to be more than 5 or so people there…. The wedding was important. I went, I had a good time, and I was in pain the whole time.
That’s something I working on now. Pain is my new normal. So even though I wake up, and I want to duck my head back under the covers and not wake up until they have found a cure for migraine, I have to get up and do things. And not just tidy my house and get ready to tutor. I have to do something interactive or out of my house. Its some kind of therapy called Acceptance and Commitment. It’s about accepting your life as it is, and committing to find a way to live the best life, even with whatever is happening to you. So I have accepted the fact that I may live every day in pain (well.. I’m working on accepting it… I’ve spent the last 10 years holding my breath for the migraines to stop… and now I can stop holding my breath.. because they won’t)
I’m really not sure what happened with this post… it took many a twist and turns. I guess I just wanted to let anyone reading out there.. that
- I didn’t abandon you
- It’s okay if you are unwell, and you don’t look it – own it!
- I’ve been in status migraine for 15 days, so I’ve been a crazy person in terms of my blog/twitter/instagram. (It almost sounds like something I should be proud of…. Status: migraine.)
- I’m proud of myself for going to my friends wedding and enjoying myself, and hopefully hiding my pain
I’m hoping to figure out a regular schedule for my posts. It’ll force me to actually get my shit together and write something, and it will have all you readers going “well…is she going to post??”
When I figure it out, I’ll post it.
Coming up next time
- A book review on “The Migraine Miracle”
- Perhaps a visit to my many different migraine emergency bag
- Possibly a picture of my workspace – because pinterest says that… and we all know how much I love to listen to pinterest